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GUCCHD Online Resources
= Designates GUCCHD Resources
Additional Web sites of interest
- Fathers Network celebrates and supports fathers and families raising children with special health care needs and developmental disabilities.
- The Healthcare Collaborator is a monthly online newsletter offering communication strategies to build better working relationships among healthcare colleagues.
Children's Mental Health
- Atlantic Information Services, Inc. (AIS) develops specialized news, data and analysis for managers in hospitals, managed care plans, medical group practices, other providers and provider organizations, employers, attorneys and consultants. Three areas of focus are Managed Care, Physician Practice Management, and Medicare Compliance.
- Autism Society of America Promotes lifelong access and opportunities for persons within the autism spectrum and their families, to be fully included, participating members of their communities through advocacy, public awareness, education, and research related to autism.
- Child and Adolescent Services Research Center CASRC focuses on mental health care issues for vulnerable children, including children in public service sectors. In addition, CASRC specializes in longitudinal studies of children at risk for development of mental disorders and other problems in psychosocial functioning, and the effectiveness of early preventive interventions.
- Child Welfare League of America CWLA is an association of almost 1,000 public and private nonprofit agencies that assist over 2.5 million abused and neglected children and their families each year with a wide range of services.
- Children's Defense Fund CDF provides a strong, effective voice for all the children of America who cannot vote, lobby, or speak for themselves. CDF pays particular attention to the needs of poor and minority children and those with disabilities.
- Council for Exceptional Children (CEC) is the largest international professional organization dedicated to improving educational outcomes for individuals with exceptionalities, students with disabilities, and/or the gifted.
- National Association of Psychiatric Health Systems mission encompasses all organizations serving people with psychiatric and substance abuse disorders-- representing behavioral healthcare systems that are committed to the delivery of responsive, accountable, and clinically effective treatment and prevention programs for children, adolescents, and adults with mental and substance use disorders.
- National Center for Education in Maternal and Child Health provides national leadership to the maternal and child health community in three key areas of program development, policy analysis and education, and state-of-the-art knowledge to improve the health and well-being of the nation's children and families.
- The Annie E. Casey Foundation is a private charitable organization dedicated to helping build better futures for disadvantaged children in the United States.
Cultural Competence
Databases/Electronic Libraries
- Child Trends, Inc. is a nonprofit, nonpartisan research organization that studies children, youth, and families through research, data collection, and data analysis.
- Children, Youth and Family Consortium (University of Minnesota) The Children, Youth and Family Consortium's Electronic Clearinghouse (CEC) is an electronic bridge to information and resources on children, youth and families. Information about issues related to the health, education and well-being of children, youth and families can be accessed via CEC. This site features articles and research material useful for informing everything from practical parenting to formulating policies, and designing and implementing programs.
- PREVLINE: Prevention Online The National Clearinghouse for Alcohol and Drug Information Searchable databases of materials on alcohol, tobacco, and drugs.
- Research Forum on Children, Families, and the New Federalism was created in January 1997 to facilitate the development of rigorous, policy relevant research about the effects of the new federalism on poor and vulnerable populations. Web site features a searchable database of summaries of large- and small-scale research projects.
Early Childhood
- District of Columbia Public Schools Website for all aspects of the District of Columbia's School System.
Special Education information can be found at:
http://www.k12.dc.us/dcps/specialed/dcpsspecedhome.html
- Head Start is a national program that provides comprehensive developmental services to low-income, pre-school children ages three to five and social services for their families.
- SIDS Alliance is a national, non-profit, voluntary health organization dedicated to the support of SIDS families, education and research.
- SIDS Network offers up-to-date information as well as support for those who have been touched by the tragedy of SIDS/OID.
- Smart Start is a comprehensive public-private initiative to help all North Carolina children enter school healthy and ready to succeed. Smart Start programs and services provide children under age six, access to high-quality and affordable childcare, health care and other critical family services.
- The Division for Early Childhood of the Council for Exceptional Children is a nonprofit organization advocating for individuals who work with or on behalf of children with special needs, birth through age eight, and their families.
- Zero to Three A national, nonprofit organization dedicated solely to advancing the healthy development of babies and young children.
Families and Children's Organizations
- Families USA is a national nonprofit, non-partisan organization dedicated to the achievement of high-quality, affordable health and long-term care for all Americans.
- Family Support America is an alliance of people and organizations supporting and strengthening America’s families.
- Family Voices A diverse group, representing a wide variety of children, health conditions, families, and communities.
- Fathers Network celebrates and supports fathers and families raising children with special health care needs and developmental disabilities
Federal and State Governments
- Catalog of Federal Domestic Assistance (CFDA) is a government-wide compendium of all 1,386 Federal programs, projects, services, and activities that provide assistance or benefits to the American public.
Department of Education Office of Special Education and Rehabilitation Services
- Head Start is a national program that provides comprehensive developmental services to low-income, pre-school children ages three to five and social services for their families.
- Immigration and Naturalization Service guidance and proposed regulation to alleviate growing public confusion over the meaning of the currently undefined term " public charge " in immigration law and its relationship to the receipt of Federal, State, or local public benefits.
- National Institute of Mental Health Information on specific mental disorders, diagnosis and treatment, "Mental Illness in America", Consensus Conference proceedings, NIMH long range plans & research reports, publications order forms, quicktime videos, information on the DEPRESSION Awareness, Recognition, & Treatment (D/ART) and the Anxiety Disorders Education Program, and other resources (también publicaciones en Español para pacientes y el público en general)
- Stateline.org Operated by the Pew Center on the States, a research organization administered by the University of Richmond, and funded by the Pew Charitable Trusts. Stateline.org was founded in order to help journalists, policy makers and engaged citizens become better informed about innovative public policies. Stay abreast of important developments in the 50 state capitols; statistical data on healthcare, welfare reform, education, etc.; news alerts; and event calendars.
- Substance Abuse & Mental Health Services Administration SAMHSA's mission within the Nation's health system is to improve the quality and availability of prevention, treatment, and rehabilitation services in order to reduce illness, death, disability, and cost to society resulting from substance abuse and mental illnesses.
Georgetown University and Medical Center
Legal Resources
- National Health Law Program is a national public interest law firm that seeks to improve health care for America's working and unemployed poor, minorities, the elderly and people with disabilities.
Making Services and Systems Work
Medicare/Medicaid
- The "Medicaid Matters to Someone You Know" public education campaign has been launched and a toolkit to assist local and state advocates in protecting the program. The toolkit contains print ready materials as well as materials that can be adapted to include a state or local organization's logo. The campaign's designers encourage users of the materials to adopt a unique and more localized message or replace the photographs with ones from your state or locality. The website was developed through a joint effort by several organizations, including the Georgetown University Health Policy Institute, the Center on Budget and Policy Priorities, and Families USA. It is intended to be a dynamic effort and will be updated regularly.
- The CCD Social Security Task Force created a set of Fact Sheets to educate people about the potential devastating effect of major program changes. The Fact Sheets discuss the following topics:
Open these print friendly versions of the CCD Fact Sheets with either MSWord® or Adobe Reader(PDF)
- What Benefits Do People with Disabilities and Their Families Get from
Social Security?
- How Does Social Security Help People with Disabilities & Their Families?
- How Does Social Security Protect Young Workers and Their Families?
- How is Social Security Funded?
- How Will Individual Private Accounts Affect Social Security?
- How Are the Social Security & SSI Disability Programs Different?
- Checklist: Effect of Proposed Changes on People with Disabilities & Their
Families
- The Medicaid Prescription Drug Improvement, and Modernization Act of 2003 (P.L. 108-173) gives elderly and disabled people on Medicare access to drug coverage beginning in 2006. This is a fact sheet prepared by The Henry J. Kaiser Family Foundation.
Organizations, Projects,and Resource Networks
- ERIC Clearinghouse on Disabilities and Gifted Education One of 16 federally funded clearinghouses in the ERIC system, a nationwide information network sponsored by the U.S. Department of Education, Office of Educational Research and Improvement (OERI), and administered by the National Library of Education (NLE).
- The Carter Center is a nonprofit public policy center founded by Jimmy and Rosalynn Carter to fight disease, hunger, poverty, conflict, and oppression around the world.
- The National Council of La Raza (NCLR) is a private, nonprofit, nonpartisan, tax-exempt organization established in 1968 to reduce poverty and discrimination, and improve life opportunities for Hispanic Americans.
Research and Training Centers
Special Education
- Communities In Schools is a leading community-based organization helping kids succeed in school and prepare for life.
- District of Columbia Public Schools Website for all aspects of the District of Columbia's School System.
Special Education information can be found at:
http://www.k12.dc.us/dcps/specialed/dcpsspecedhome.html
- Prevention Strategies That Work An electronic guide titled "What Administrators Can Do To Promote Positive Student Behavior" describes prevention practices that K-8 public school administrators have found to be effective in accelerating school performance, increasing readiness for learning, and reducing problem behaviors.
State Children's Health Insurance Program
- HCFA Guidelines on Outreach. Topics include outstationing eligibility workers, mail-in applications, simplifying the application process, presumptive eligibility, and other outreach strategies. Also includes examples of successful state outreach efforts and a sample joint SCHIP/Medicaid application form.
Statistics on Children
- FEDSTATS is a collaborative effort of over 70 federal government agencies uses the internet to navigate publicly-available statistics so that users can find information without having to know which agency produces the data. Major features include “fast facts” links to frequently requested tables, direct links to federal statistical agencies, and regional statistics by state or county.
- KIDS COUNT Data Online Web site contains yearly updates on 10 key indicators of child well-being conducted by the Annie E. Casey Foundation, including state profiles, custom graphs, rankings, and raw data.
- U. S. Department of Education shares the latest research findings, statistics, and information on education to help state and local decision makers improve their schools.
Systems of Care
Transition
- Family Village School We are a global community that integrates information, resources, and communication opportunities on the Internet for persons with cognitive and other disabilities, for their families, and for those that provide them services and support.
- Intersection: Navigating the Road to Work, is the electronic newsletter of the National Collaborative on Workforce and Disability for Youth (NCWD/Youth). The newsletter and the NCWD/Youth website offer information to improve services to youth and especially youth with disabilities.(intersection@ncwd-youth.info)
- The Youthhood Web site is the National Center on Secondary Education and tansition's new interactive Web-based curriculum developed to help young adults plan for life after high school. The site addresses youth directly yet is intended to be used as a
curriculum within a classroom, community program, or any other setting where adults are working with youth to help them set goals and plan for the future.
- Workability I Family Transition Guide A Guide for Parents and Families to Prepare Students With Special Needs to Enter Post-Secondary Envrionments, from California School to Work Interagency Transition Partnership Web site
Violence Prevention
- Communities In Schools is a leading community-based organization helping kids succeed in school and prepare for life.
- Conflict and Violence Center for Adolescent Studies at Indiana University, Adolescence Directory Online (ADOL)--Links to Web resources for parents, educators, researchers, health practitioners, and teens.
- National Center for Children Exposed to Violence (Child Study Center, Yale University) is a dynamic multi-faceted organization dedicated to finding solutions to the complex issues that face children, families and communities exposed to violence.
- Partnerships Against Violence Network PAVNET Online--A "virtual library" of information about violence and youth-at-risk, representing data from seven different Federal agencies. A "one-stop," searchable, information resource to help reduce redundancy in information management and provide clear and comprehensive access to information for States and local communities.
- School Violence Prevention The Center for Mental Health Services' resource on comprehensive educational, mental health, social service, law enforcement and juvenile justice services for youth.
- Virginia Youth Violence Project The Curry School of Education, University of Virginia--Identifies effective methods and policies for youth violence prevention, especially in school settings.
Web sites addressing health care and cultural diversity issues
- Healthfinder — a Federal web site developed by multiple agencies. The section “just for you” provides health information for various racial and ethnic groups, for different ages and for individuals with disabilities. There is a newly developed section for American Indians and Alaska Natives.
- Opening Doors, a program to reduce cultural barriers to health care, sponsored by the Robert Wood Johnson Foundation and the Kaiser Family Foundation.
Web sites focusing on culturally and linguistically appropriate services to children
Web sites related to communication
- Assessing Materials for Low Literacy Readers. The National Cancer Institute has several useful documents available on the web at http://oc.nci.nih.gov/services. Two documents related to literacy issues include: Clear and Simple: Developing Effective Print Materials for Low-Literate Readers and Theory at a Glance: A Guide for Health Promotion Practice. There are also documents related to accessibility of web information.
- LEP.gov has information on implementation of Executive Order 13166 regarding language access to federal and federally assisted programs.
Web sites related to cultural competence skills and experts
Web sites related to policy, guidelines and other resources
Web sites related to Sudden Infant Death Syndrome / Infant Death
- SIDS Alliance is a national, non-profit, voluntary health organization dedicated to the support of SIDS families, education and research.
- SIDS Network offers up-to-date information as well as support for those who have been touched by the tragedy of SIDS/OID.
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